Patients and their supporters share their stories.
Thank you to those that do share their stories. All stories are shared with permission and written by the patient or supporter.
I am a 24 year old step mother and wife who fought through endometriosis. I knew the day would come with my battle only because both my mother and sister had it around my age and had hysterectomies after they were finished with kids. I must say that I was not prepared for the pain both emotionally and physically. See my mother dealt with it for 10 years prior to fixing it, I am not as tough as her. Well not only did this disease affect me but also my new husband, we just got married in September. A few months into our marriage, making love became unbearable which was horrible and damaging. I have been so lucky to have such a sweet understanding husband who knew I was unable to feel the same and function the same. One OB sent me of course to another OB specialist who then sent me to a Pelvic Pain Specialist that I had to wait 3 months to get in to! Oh the irony! This started the chain of frustrations, mood swings and depression. ER visits made me feel like I was a liar who needed to suck it up. As well as comments from people who could not even begin to understand my life at this point " She sure is sick a lot" " Is she getting addicted to pain pills?". I was so hurt that I couldnt get relief or help and that I couldnt do what every newly wed is supposed to enjoy! The regimen until I could see the pelvic pain specialist... pain pills, 600 mg of ibprofuen and of course anti- nausea medicines. Every hospital thinks you just want more drugs and every one around you is worried of addiction. I started feeling like a burden, wuss and less of a person let alone myself.I want to state I never once took a pain pill while taking care of my step daughter alone, I hate pain pills they make me sick and also back me up. I finally got into the pain specialist, oh I could not wait to finally have some understanding and a plan. See my husband and I really wanted to have a kid of our own but we both had ticking time bombs. I never wanted kids until I met my husband so finding out I had endometriosis on top of already knowing that it would be hard to get pregnant on his end was devastating. I love my step daughter like she is my own, I cant imagine life with out her but I also wanted to give her a sibling, wanted to experience making something amazing with the person I love most. I didnt get my step daughter as a baby, I came into her life when she was 5, now 6 so I wanted to hold my baby. The pelvic pain specialist went over medical history and performed an exam in which once again I wanted to fly off the table in pain. She diagnosed me with having Pelvic Floor Tension Myalgia, she said that would require physical therapy. Once again we were just going to ignore the endometriosis. After all I had been put through that was not a good enough plan, I finally found my voice for my body! I told her that I would like to have the surgery since all the OB's prior had stated that would help our chances with conceiving and explained that I dont want to wait more months when we have odds against us. She agreed and said that if she removed the endo it could help the pelvic floor tension myalgia since that sometimes is worsened by endo. A month later on March 30, 2015 I finally got my surgery, they popped cysts and removed what they had found. My pelvic floor tension myalgia is not as bad and I have not attended physical therapy yet. So with saying all this, I am so happy to announce that I am now 7 weeks pregnant! I want to state that you know your body better than any one else, dont let people make you feel bad about being sick. Speak up and ask questions. Stay Strong!