Here’s the thing-endometriosis is a chronic illness, no known cause, no known cure. Now that we’ve gotten that out of the way, let’s talk about how it changes our lives. I’ve written previous posts with positivity sprinkled in there. Personally I think it is the best way to go about dealing with this disease (yes disease, not condition). You can’t always look at this disease as what has gone wrong, there must be some type of positivity or optimism in order to stay sane.
Life is full of challenges and endo challenges patients, their relationships with friends, family, and significant others, and continues to baffle the majority of the medical community. Endo changes everyone involved and every aspect of life, but life is always changing-with or without endo. This is one of the key points I try to remind myself of constantly-if I didn’t have endo, I’d be changing and evolving. It is more difficult to think of endo as limiting me and my life rather than just an additional challenge.
My endo story is a bit different from others-I didn’t have pain for years and years (I did, but I didn’t realize it was abnormal)-and then I got really sick. I had 3 surgeries in 3 years-each in July. I just passed my one year anniversary of my excision-and yet, I will likely need another surgery for my liver and diaphragm. There are many ways to paint this picture of my life with endo. I could explain how much more difficult it made my college life, how hard it was for me to focus, the treatments I went through, the lack of knowledge I had when I was first diagnosed, the relationships I lost, or I could talk about how working hard made me realize what I wanted in life, learned the people that will stick by me no matter what, and the knowledge that I have gained not only on endometriosis but on gynecology, pain and surgery in general.
Endo sucks. It hurts and causes some bad days, but there are good days too. There are new relationships created, lessons and knowledge learned and shared, and a new outlook on life. Personally, I get anxious more easily now-about appointments, day-to-day activities, and life in general (in fact, I’m anxious about upcoming appointments as I write this post). I am also that much more grateful for the good days, forcing myself to be out of my little box, challenging myself to be stronger everyday and continue to fight this disease. Endo brings about constant changes in your course-change in plans, change in relationships, and change in medications and options.
However, life gives everyone challenges and with or without endo it would constantly be evolving-it is how you take those challenges and make them work to your benefit.